Genetic Information
| Genetic Information | Category |
|---|---|
| Sample Telehealth Consent Language Resource Developed By: Western States Regional Genetics Network (WSRGN)
Audience: Professionals |
COVID-19 |
| Mapping and Designing Telehealth Clinic Workflows Resource Developed By: National Consortium of Telehealth Resource Centers
Audience: Professionals |
COVID-19 |
| Providing Services via Telephone during COVID-19 Resource Developed By: Center for Connected Health Policy
Audience: Professionals |
COVID-19 |
| Genetic Counseling in the Time of COVID-19 Resource Developed By: Centers for Disease Control and Prevention (CDC)
Audience: Professionals |
COVID-19 |
| IFSPs, IEPs, and 504 Overview Helpful information and resources regarding IFSPs, IEPs, and 504 plans.
Audience: Families |
IFSPs, IEPs, and 504 Plans |
| Pathways to Reimbursement Success Cambrooke Therapeutics (includes several LMN for medical food, seizure disorder, PKU and other metabolic conditions).
Audience: Families |
Insurance and Appeals |
| Maneuvering Through the Maze A Family Resource Guide for Families having Children with Special Health Care Needs and Disabilities. New Hampshire Family Voices
Audience: Families |
Insurance and Appeals |
| Family Voices Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with…
Audience: Families |
Insurance and Appeals |
| Family-to-Family Health Information Centers Family-to-Family Health Information Centers are family-led centers that provide free, confidential assistance to families raising children and youth…
Audience: Families |
Insurance and Appeals |
| Consumer Complaints Toolkit: Health Insurance Resources for Health Advocates, Health Providers and Enrollment Assisters From Community Catalyst, Boston (June 2016).
Audience: Families, Professionals |
Insurance and Appeals |
| Children's Health Insurance HealthyChildren.org
Audience: Families |
Insurance and Appeals |
| Appeals: Appealing Funding Denials From the Medical Home Portal, University of Utah
Audience: Families |
Insurance and Appeals |
| The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) Provides quality improvement initiatives, an innovative data repository and technical resources for newborn screening programs.
Audience: Professionals |
Newborn Screening |
| Newborn Screening Coding and Terminology Guide: Data Standards for Electronic Reporting Released by the U.S. National Library of Medicine in partnership with NIH, HRSA & DHHS. The goal of this guide is to promote and facilitate the…
Audience: Professionals |
Newborn Screening |
| National Coordinating and Evaluation Center: Sickle Cell Disease and Newborn Screening The Sickle Cell Disease and Newborn Screening Program (SCD-NBS) is comprised of 17 national funded community based sickle cell disease (SCD) projects…
Audience: Families, Professionals |
Newborn Screening |