Sickle Cell Disease Association of America (SCDAA)

The Sickle Cell Disease Association of America has envisioned a national coordinated approach to addressing things related to sickle cell disease since 1971. There are member organizations across the country.

Genetics Home Reference

Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Genetics Home Reference for Sickle Cell disease

Sickle Cell Information Center

The mission of the Sickle Cell Information Center is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. 

Kid's Health from Nemours - Sickle Cell Disease

KidsHealth is the #1 most-visited website for children's health and development.


Learn more about the genetics of Sickle Cell Disease.

American Academy of Pediatrics (AAP) - Health Supervision Guidelines

The AAP endorses these Health Supervision Guidelines. Families may find these helpful when talking to their pediatricians or family physicians.

Centers for Disease Control and Prevention

Tips for Supporting Students with Sickle Cell Disease was created by the CDC in order to provide a tool for teachers, other school staff, and parents/caregivers to support students living with SCD. 

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents? Please share the specific titles or addresses with us.