Fragile X Syndrome: Diagnosis, Treatment, and Research
This book published in 2002 by John Hopkins University Press is a good resource. It was edited by Randi Jenssen Hagerman, M.D. and Paul J. Hagerman, M.D., Ph.D. Here is a link to Amazon.com for more details.
National Fragile X Foundation
The Fragile X Foundation We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.
- Fragile X 101
- Education Guidelines - developed with individuals with FX in mind, but may help others with similar characteristics even without an official diagnosis
- Fragile X Clinics
FRAXA Research Foundation
American Academy of Pediatrics (AAP) - Health Supervision Guidelines
Medline Plus Reference
Consumer-friendly information about human genetics from the U.S. National Library of Medicine