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News

8.13.2018
Examining the Cascade of Participant Attrition in a Genomic Medicine Research Study: Barriers and Facilitators to Achieving Diversity
8.13.2018
Plan to replicate 50 high-impact cancer papers shrinks to just 18
7.30.2018
Recognizing and Managing Children with a Pediatric Cancer Predisposition Syndrome: A Guide for the Pediatrician.
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Events

10.15.2018
Rare Diseases & Orphan Products Breakthrough Summit
10.16.2018
ASHG Annual Conference
11.1.2018
ACHDNC Meeting/Webinar
All Events

Did You Know?

Upcoming Conference Sponsored by Rare New England

"Improving Health Care Experiences in the Rare Disease Community"

Save the Date: November 10, 2018!  Featured Speakers will include:

Mark Korson MD, VMPGenetics
Amel Karaa MD, Mass General Hospital
John Campbell, GlaxoSmithKline 
Karen Volle, NERGN
Joy Buzzell, Epilepsy Foundation
MA Representative Joseph McKenna

Featured Resource

Understanding Disparities in Access to Genomic Medicine: A Workshop

Recently, at the National Academy of Sciences, Engineering and Medicine, attendees met to discuss disparities in access to genomic medicine. Presentations may be viewed here.