Sadly, federal funding for the Regional Genetic Networks has ended.

NERGN will close May 31, 2024
This website will remain live but will not be monitored after May 31.


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Message from NERGN about our closure:

The New England Regional Genetic Network (and its predecessor, the New England Genetic Collaborative) works to advance the health and well-being of individuals with or at risk of genetic conditions by improving access to genetic services, educating professionals to strengthen systems of genetic care, and supporting families in New England. We have loved serving this region and collaborating with our amazing partner agencies since 2007. Unfortunately, the funding for all Regional Genetic Networks is ending. We trust that the work of NERGN will continue through the relationships and infrastructure we have built collectively over the years. Thank you for being part of our journey!


  • children and their care-givers

    Improving health through partnerships with genetics.

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    About Us

    We support families, educate providers and improve genetic care delivery systems. Here

    Start Here

  • child playing with blocks

    Access helpful classroom strategies for children with genetic conditions.

    Start Here

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    A trusted source for health provider trainings throughout the year.

    Start Here

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Condition-Specific Genetic Education Materials

  This leading resource for family members, primary care providers, and school teams shares care and inclusion strategies

View Conditions

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Links & Information for Families

Find key contacts for families by New England state; view family-specific educational videos and resources.

For Families

Earn free professional development credits for upcoming ECHO sessions and genetic webinars, and view recordings of past offerings

for Professionals