Home

  • picture of a person looking at a screen
  • three sets of families
  • Leah Burke's photo and webinar
  • What We Do - Primary Care
  • picture of a family, text

Resources

Find Services

Resource Library

 

 

News

1.30.2020
Addressing Disparities Will Advance Genomics, Precision Medicine
1.28.2020
Health Data Privacy: Why Eroding Public Trust Harms Medical Research
12.12.2019
Family Perspectives on Newborn Screening for X-Linked Adrenoleukodystrophy in California
All News

Events

4.6.2020
NERGN Telegenetics Training
4.16.2020
NERGN 2020 Annual Meeting

Did You Know?

Over 40 Families Attend First Workshop for Latino Parents in Western Mass.

The MA Federation for Children with Special Needs held its Latino Parent Leadership Program for the first time in western Massachusetts. 

Future plans for the group include a guest presentation by Ed Kloza, genetics consultant with NERGN. 

Thanks to our partner at the Federation, Olga Lopez, for helping making this possible! 

Featured Resource

Helplful Tool Developed by Family Voices: Family Engagement in Systems Tools (FESAT) 

Families can be important drivers of systems change to ensure children receive health care. The Family Engagement in Systems Tool (FESAT) is designed to help assess and improve family engagement in child- and family-serving organizations.