• three sets of families
  • CCHD picture of baby


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Upcoming Conference Sponsored by Rare New England

"Improving Health Care Experiences in the Rare Disease Community"

Save the Date: November 10, 2018!  Click here to register. Featured Speakers will include:

Mark Korson MD, VMPGenetics
Amel Karaa MD, Mass General Hospital
John Campbell, GlaxoSmithKline 
Karen Volle, NERGN
Joy Buzzell, Epilepsy Foundation
MA Representative Joseph McKenna