Home

  • three sets of families
  • Leah Burke's photo and webinar
  • What We Do - Primary Care
  • picture of a family, text
  • picture of a person looking at a screen

Resources

Find Services

Resource Library

 

 

News

10.10.2019
After A Life Of Painful Sickle Cell Disease, A Patient Hopes Gene-Editing Can Help
9.25.2019
Sign on to support bill H.R.4144, the “Ending the Diagnostic Odyssey Act.”
9.20.2019
Whole-Genome Sequencing Plus AI Yields Same-Day Genetic Diagnoses
All News

Events

10.15.2019
NERGN - Family Voices Retreat
10.25.2019
NERGN Steering Committee Meeting
10.26.2019
Rare New England 2019 Annual Conference
All Events

Did You Know?

"A Few Things to Know About Your Child's Visit to the Genetics Clinic" now available!

Developed by NERGN to be a plain language brochure for families, "A Few Things to Know About Your Child's Visiit to the Genetics Clinic" highlights:

  • Why was my child referred?
  • What will happen?
  • What can I do while I wait?

If you would like printed copies, let Karen Volle (karen.volle@unh.edu) know. We're excited to share and hope you will, too!

Featured Resource

"Regional Models of Genetic Services in the United States" is now Published

National Coordinating Center (NCC) is excited to announce that the paper, detailing how the regional support service model was developed in the previous funding cycle, is available as an open access article in Genetics in Medicine.

Check out the infographic!