Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation  is a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.

Medline Plus Reference

Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Medline Plus Reference for Cystic Fibrosis 

Sample 504 Plan for a child with CF

Here is a sample 504 Plan for a child with CF, written by a parent. 

Individuals with Disabilities Education Act (IDEA)

The Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to more than 6.5 million eligible infants, toddlers, children and youth with disabilities.

National Heart, Lung, and Blood Institute

The National Heart, Lung, and Blood Institute (NIH) "What is Cystic Fibrosis" Article

Mayo Clinic

The Mayo Clinic has information about Cystic Fibrosis.