About Us

Vision

"All individuals with genetic conditions in New England have the opportunity to achieve their fullest potential."

Staff

Kimberly Phillips Profile

Kimberly Phillips, PhD

PI/Program Director

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-0060
kimberly.phillips@unh.edu


Karen Volle Profile

Karen Volle

Project Manager

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-3454
(603) 862-0555 (fax)
karen.volle@unh.edu


Ed Kloza

Ed Kloza, MS, CGC

Genetics Consultant

Women & Infants Hospital of Rhode Island


Leah Burke Profile

Leah Burke, MD

Clinical Genetics Consultant

Larner College of Medicine at The University of Vermont
S-253 Given Courtyard
89 Beaumont Avenue
Burlington VT 05405
leah.burke@uvm.edu


Marisa Rafal

Marisa Rafal, MPP

Data & Communications

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-4320
marisa.rafal@unh.edu


Alexi Archambault Profile

Alexi Archambault

Outreach & Resource Development

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-4320
ama1045@wildcats.unh.edu

Objectives
  • Partner with family-led and other regional organizations to improve knowledge of and access to genetic services.
  • Expand the use of telehealth for genetic consults and care.
  • Engage non-genetics health professionals in training and education about genetics.
  • Focus on reaching and including medically underserved areas and populations.
  • Increase the availability and use of genetic resources.