About Us

 

Sadly, federal funding for the Regional Genetic Networks has ended. NERGN closed on May 31, 2024. This website will remain live until November 2025 but will not be monitored.

 

Vision

"All individuals with genetic conditions in New England have the opportunity to achieve their fullest potential."

Staff


Profile picture of Angela Shephard, white woman with dark hair

Angela Shepard, MD

Director

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-0555 (fax)
angela.shepard@unh.edu


Karen Volle Profile

Karen Volle

Project Manager

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-3454
(603) 862-0555 (fax)
karen.volle@unh.edu


Ed Kloza

Ed Kloza, MS, CGC

Genetics Consultant

Women & Infants Hospital of Rhode Island


A white woman with short lavendar colored hair. She is wearing a burgundy sweater and a silver necklace.

Toni Sumner-Beebe

Senior Program Support Assistant

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
603-862-2175
toni.sumner-beebe@unh.edu


Objectives
  • Partner with family-led and other regional organizations to improve knowledge of and access to genetic services.
  • Expand the use of telehealth for genetic consults and care.
  • Engage non-genetics health professionals in training and education about genetics.
  • Focus on reaching and including medically underserved areas and populations.
  • Increase the availability and use of genetic resources.