About Us

Vision

"All individuals with genetic conditions in New England have the opportunity to achieve their fullest potential."

Staff


Karen Volle Profile

Karen Volle

Project Manager

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
(603) 862-3454
(603) 862-0555 (fax)
karen.volle@unh.edu


Ed Kloza

Ed Kloza, MS, CGC

Genetics Consultant

Women & Infants Hospital of Rhode Island


Leah Burke Profile

Leah Burke, MD

Clinical Genetics Consultant

Larner College of Medicine at The University of Vermont
S-253 Given Courtyard
89 Beaumont Avenue
Burlington VT 05405
leah.burke@uvm.edu

headshot of Toni

Toni Sumner-Beebe

Senior Program Support Assistant

UNH Institute on Disability
10 West Edge Drive
Durham, NH 03824
603-862-2175
toni.sumner-beebe@unh.edu


Objectives
  • Partner with family-led and other regional organizations to improve knowledge of and access to genetic services.
  • Expand the use of telehealth for genetic consults and care.
  • Engage non-genetics health professionals in training and education about genetics.
  • Focus on reaching and including medically underserved areas and populations.
  • Increase the availability and use of genetic resources.