New England Consortium of Metabolic Programs

New England Consortium of Metabolic Programs  has a wealth of information on metabolic conditions including galactosemia. See below:

Understanding Galactosemia – an introductory guide for educators, featuring a basic description of galactosemia, suggested teaching strategies, classroom management ideas, and additional resources.

Galactosemia: Resources for Educators – a detailed guide for educators with in-depth information about galactosemia, about special challenges for students with the condition, and featuring information about therapies, classroom environment, lesson planning, teaching technologies, and other resources.

Galactosemia Foundation

Previously known as "Parents of Galactosemic Children Inc.", the Galactosemia Foundation's goal is to educate, support, and provide advocacy for those individuals affected by galactosemia.

Navigating Galactosemia Life Stages - A handbook that presents current information for each life stage, including various symptoms that may appear.

Galactosemia School Guide - Education and tools for key milestones in your child's galactosemia journey.

Medline Plus Reference

 Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Medline Plus Reference for Galactosemia 


Learn even more about the genetics of Galactosemia at NCBI Bookshelf / GeneReviews