What you need to know
- Individuals with Marfan syndrome may look “different” than their peers.
- Taller than average
- Very skinny and lanky
- Stretch marks
- Chest wall deformities
- Foot problems.
- Feeling as though they look different may affect self-esteem.
- Back braces, and orthotics may further affect self-esteem and confidence.
- Individuals may be unable to participate in many activities, can lead to feelings of isolation
- Individuals with Marfan syndrome may experience pain.
- May be chronic may interfere with ability to focus or sit for long periods of time
What you can do
- Allow privacy in changing if needed
- Encourage discussions about differences and acceptance of differences within classroom
- Provide explanation of the condition and how it affects individuals
- Encourage participation in activities as appropriate
- Allow access to nurse and medications as needed
- May need to take breaks and/or rests