Family Resources

Family Resources
Three smiling girls

Key Contacts by New England State

Family Voices 

Path CT 
P.O. Box 117 
Northford, CT 06472 
(800) 399-PATH  

Newborn Screening 

The CT Newborn Screening Program 
Dr. Katherine A. Kelley State Public Health Laboratory 
395 West Street 
Rocky Hill, CT 06067-3503 
(860) 920-6628

Family Voices

Maine Parent Federation 
484 Maine Ave. 2D 
Farmingdale, ME 04344 
(207) 588-1933 
(800) 870-7746 

Newborn Screening 

Maine Newborn Bloodspot Screening Program 
Maine Center for Disease Control & Prevention 
Division of Disease Prevention 
11 State House Station 
286 Water Street 
Augusta, ME 04333 
(207) 287-8188 
(800) 698-3624

Family Voices 

Federation for Children with Special Needs 
Schrafft Center  
529 Main Street, Suite 1M3  
Boston, MA 02129  
(617) 236-7210 
(800) 331-0688   

Newborn Screening  

New England Newborn Screening Program 
Biotech 4, 2nd Floor 
UMass Medical School 
377 Plantation Street 
Worcester, MA 01605-2300 
(774) 455-4600

Family Voices 

New Hampshire Family Voices 
129 Pleasant St. 
Concord, NH 03301 
(603) 271-4525 
(800) 852-3345  

Newborn Screening 

Newborn Screening Program 
NH Department of Health and Human Services 
129 Pleasant Street 
Concord, NH 03301-3852 
(603) 271-4517 
(800) 852-3345 x4517

Family Voices 

Rhode Island Parent Information Network 
300 Jefferson Blvd., Suite 300 
Warwick, RI 02888 
(401) 270-0101  

Newborn Screening 

Newborn Screening 
RI Department of Health 
301 Capitol Hill 
Providence, RI 02908 
(401) 222-5960

Family Voices 

Vermont Family Network 
600 Blair Park Rd, Ste 240 
Williston, VT 05495 
(802) 876-5315

Newborn Screening 

Maternal & Child Health Division 
108 Cherry Street 
Burlington, VT 05401 
(802) 863-7333 
(800) 464-4343

Education Materials

Introductions to Genetics for Parents and School Personnel with NERGN


Genetic Conditions from PATH CT

Genetics Video from PATH CT

Mitochondrial Disorders Video from PATH CT

Mitochondrial Disorders - PATH CT

Cystic Fibrosis Video from PATH CT

Cystic Fibrosis - PATH CT

Alagille Syndrome Video from PATH CT

Alagille Syndrome - PATH CT

Sickle Cell Video from PATH CT

Sickle Cell - PATH CT

Kabuki Syndrome Video from PATH CT

Kabuki Syndrome - PATH CT

Congenital Heart Defects Video from PATH CT

Down Syndrome Video from PATH CT

Fragile X Video from PATH CT

Neurofibromatosis Video from PATH CT

Williams Syndrome Video from PATH CT

PKU Video from PATH CT

Newborn Screening Video from PATH CT

Autism Video from PATH CT

Summer Genetics Series - from Vermont Family Network

The Mystery in Our Genes

Newborn Screening and the EHDI Program

Vermont Resources When Navigating the Confusing World of Genetics

Back to School Tips for Children with Special Health Needs

Thanks to the Vermont Family Network for hosting their first Genetics Summer Series in August 2021!