What you need to know
All individuals who have VLCAD need an emergency letter to be given to health care providers in the event of a crisis. The letter should address the following:
- When a child with VLCAD has a viral illness or otherwise has decreased intake they may become lethargic or hypoglycemic.
- Glucose through an IV is essential to prevent hypoglycemia and other complications.
- The heart muscle can be affected and cause abnormal heart rhythms that may need to be treated.
- Watch for red or rust colored urine or muscle cramps that may be a sign of muscle breakdown (rhabdomyolysis).
- Symptoms that a child with VLCAD may be in trouble may include:
- Lack of energy
- Muscle weakness
- Muscle cramps
- Any vomiting or diarrhea
What you can do
- Obtain a copy of the emergency letter so treatment can begin as soon as possible.