NERGN's Annual Meeting convenes stakeholders throughout the region for cutting edge presentations on genetics-related topics, networking, and more.
Stay Tuned for Annual Meeting Updates
NERGN Annual Meeting was held on April 8-9, 2021
The first day focused on families and family organizations. The second day was geared toward all of our stakeholders.
Day 1
Identifying families in need of genetic connections
- What to look for – Leah Burke, MD
- Evolution of the Approach in CT – Carmina Cirioli and Nanfi Lubogo, PATH-CT
- Connecting families with genetics – how and why – Marci Sontag, PhD
State updates – Karen Volle
Day 2
Updates on NERGN Activities
- Provider education – Leah Burke
- Partnerships & medically underserved – Ed Kloza and Karen Volle
- Telehealth – Kim Phillips
Panel: Innovative Care Management and Web Services
- Down Syndrome Clinic to You, Brian Skotko, MD, Mass General Hospital/Harvard University
- A Physician Support Service: Addressing the Clinician Shortage in Biomedical Genetics, Mark Korson, MD, VMP Genetics
- Delivering Telehealth Using Family-Centered Practices, Tara Hays, Rhode Island Parent Information Network
Engaging underserved communities
- Experience with Marshallese and American Indian communities in the Heartland Regional Genetics Network, Lori Williamson Dean, CGC
2019 Annual Meeting: May 16th-17th