NERGN 2023
Virtual Annual Meeting
April 4-5, 2023
More information to come
Day 1: Tuesday, April 4, 2023 1pm - 4pm
- Support for rare disease patients
- Genetic Navigators
- State updates
Day 2: Wednesday, April 5, 2022 9am - 12pm
- Update on NERGN activities
- Newborn screening and early intervention
- Telegenetics - What are we learning about follow up with families?
Last Year's Annual Meeting
April 7-8, 2022
NERGN's 2022 Annual Meeting convened stakeholders throughout the region for cutting edge presentations on genetics-related topics, networking, and more.
Day 1
Empowering families: Family support, family engagement, and family leadership
- Molly Martzke, National Genetics Education and Family Support Center (view slides)
Paying for genetic services
- Matt Fickie, MD, Highmark, Inc
- Allyson Baughman, MPH, PhD, Catalyst Center (view slides)
State Family-to-Family genetics-related updates
Day 2
Updates on NERGN activities
- NERGN team
Cultural competence with genetics
- Nanfi Lubogo, PATH-CT (view slides)
The eyes: A window to genetic diagnosis
- Jodi Hoffman, MD, Boston Medical Center
The search for "truth": A consumers' guide to medical testing
- Ed Kloza, MS, CGC, NERGN (view slides)