Did You Know?
NEGC-LEND Work Group meeting in Washington, DC
Monica McClain, John Moeschler, David Helm
NEGC Collaborates with Genetic Metabolic Center for Educaton (GMCE)
This first-of-its-kind partnership creates a consulting and educational platform able to support the diagnosis and treatment of inherited metabolic disorders throughout New England.“The telehealth platform being used to launch this service will be accessible to New England hospitals and clinics through partial support by the NEGC”. Beta testing of this platform will begin in October, 2015.
The Care Coordination Conundrum for Children and Youth with Special Health Care Needs
In a new report funded by the Lucile Packard Foundation for Children’s Health,The Care Coordination Conundrum and Children and Youth with Special Health Care Needs, authors Sara S. Bachman, Meg Comeau, and Katharyn M. Jankovsky of the Catalyst Center at the Boston University School of Public Health discuss why care coordination has been insufficiently financed and reimbursed to date, and what can be done to address these challenges.