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The New England Genetics Collaborative
Improving health through partnerships in geneticsNEGC Annual Meeting A SuccessIntroducing GEMSS: Genetics Education Materials for Schools Success - featuring new tools for supporting students with genetic conditions. Click here to learn more
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News

News

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3.25.2014 Integration of genomics into the electronic health record: mapping terra incognita
3.25.2014 Reconciling the future of genomic medicine with its current reality: how do we get there from here?
2.27.2014 Attitudes of Mothers of Children with Down Syndrome Towards Noninvasive Prenatal Testing
Events

Events

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5.01.2014 Cardiovascular Disease Genomics: Getting to the Heart of the Matter
5.29.2014 DACHDNC Meeting/Webinar
7.03.2014 Face Forward Young Adult Conference
Did You Know?

Did You Know?

Register for Webinar: Navigating Insurance Issues

Read about this webinar on April 30th @ 1 PM Eastern, sponsored by The Global Genes Project. "Find out how you can better evaluate what option is best suited for your individual needs. You’ll learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases."

Regional Participants Attend ACMG Meeting

New England will be very well represented at the American College of Medical Genetics (ACMG) meeting in March, which offers exceptional learning opportunities. Seven representatives will be attending for the first time including young adults with genetic conditions. 


Featured Resource

Featured Resource

The Global Genes Project

The Global Genes Project

The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare and genetic disease community under a unifying symbol of hope. 

What began as a grassroots movement in 2009 with a few rare disease parents advocates and foundations has grown to over 500 global organizations.