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The New England Genetics Collaborative
Improving health through partnerships in geneticsNEGC Annual Meeting A SuccessIntroducing GEMSS: Genetics Education Materials for Schools Success - featuring new tools for supporting students with genetic conditions. Click here to learn more
By State


6.18.2014 Lite the Night on FIRE
6.18.2014 Back to the Future: Family History is Still Key in the Genomic Era
6.17.2014 NORD Outlines Steps to Promote Innovative Drug Discovery, Development and Delivery for Americans with Rare Diseases


9.05.2014 NEGC Quality Improvement Work Group
9.11.2014 DACHDNC Meeting/Webinar
9.17.2014 National Society of Genetic Counselors Annual Education Conference
Did You Know?

Did You Know?

Register for webinar on health reform policy brief!

Policy brief: 
New England Children with Genetic Disorders and Health Reform / Information and Recommendations for State Policymakers. 

Register for a webinar on Tuesday, September 2, 2014, from 12 pm to 1 pm, in which we'll share highlights. 

Who should attend:
Legislators, health policy advisors, staffers, those who inform the legislative process; Medicaid & Title V, family members, health care advocates, hosptials, and others involved in access to health care for children with special health needs, including genetic disorders

The webinar is hosted by the NEGC's Health Care Access & Finance work group chaired by Meg Comeau. 

Featured Resource

Featured Resource

The Medical Home Portal 

Click here for reliable information and resources to help physicians and parents care for children and youth with special health care needs (CYSHCN). 

Search resources by state and connect with programs near you. 

Developed at the Department of Pediatrics, University of Utah.