• Photo of a family
  • CCHD picture of baby
  • Quality Improvement work group photos





Did You Know?

Joanne Wechsler & Julie Gortze will attend Advocate Leader Partnership Program!

Two family/advocates will represent the NEGC at the ACMG meeting in Phoenix this March. Joanne Wechsler is a Family Support Consultant with Vermont Family Network, and is a member of the NEGC's Health Care Access & Finance work group. Julie Gortze is the Founder/President of Rare New England, Inc., in MA. Thank you for giving us your time!

The Advocate Leader Partnership Program is a subset within the broader ACMG clinical meeting. Family/advocates attend along with clinicians, but their days end with specialized de-briefing sessions with other family members and genetic counseling students. They learn, they teach, they connect. It's a successful model.