Did You Know?
Register for webinar on health reform policy brief!
Register for a webinar on Tuesday, September 2, 2014, from 12 pm to 1 pm, in which we'll share highlights.
Who should attend:
Legislators, health policy advisors, staffers, those who inform the legislative process; Medicaid & Title V, family members, health care advocates, hosptials, and others involved in access to health care for children with special health needs, including genetic disorders
The webinar is hosted by the NEGC's Health Care Access & Finance work group chaired by Meg Comeau.
Next Step's 4th Annual FaceForward Summer Conference is back! Next step is once again bringing back together teens and young adults (ages 16-24) who have been diagnosed with PKU, Metabolic, NF, Mitochondrial, or other genetic conditions for a FREE four day summer conference this July. The conference will take place at the Warren Conference Center in Ashland, MA from Thursday July 17 - Sunday July 20, 2014.
The Medical Home Portal
Click here for reliable information and resources to help physicians and parents care for children and youth with special health care needs (CYSHCN).
Search resources by state and connect with programs near you.
Developed at the Department of Pediatrics, University of Utah.