• Improving health through partnerships in genetics
  • NEGC Annual Meeting A Success!
  • Introducing GEMSS





Did You Know?

Register for webinar on health reform policy brief!

Policy brief: 
New England Children with Genetic Disorders and Health Reform / Information and Recommendations for State Policymakers.

Register for a webinar on Tuesday, September 2, 2014, from 12 pm to 1 pm, in which we'll share highlights. 

Who should attend:
Legislators, health policy advisors, staffers, those who inform the legislative process; Medicaid & Title V, family members, health care advocates, hosptials, and others involved in access to health care for children with special health needs, including genetic disorders

The webinar is hosted by the NEGC's Health Care Access & Finance work group chaired by Meg Comeau. 

Next Step's 4th Annual FaceForward Summer Conference is back! Next step is once again bringing back together teens and young adults (ages 16-24) who have been diagnosed with PKU, Metabolic, NF, Mitochondrial, or other genetic conditions for a FREE four day summer conference this July. The conference will take place at the Warren Conference Center in Ashland, MA from Thursday July 17 - Sunday July 20, 2014.