Did You Know?
NCC wants your voice to be heard!
The National Coordinating Center for the Regional Genetic Service Collaboratives (NCC) Regional Support Service Model (RSSM) Workgroup has developed a brief that proposes solutions to the current barriers and issues in the genetic service system. The brief is open for comment. Read more.
NEGC features resource for Critical Congenital Heart Disease (CCHD)
In conjunction with the CCHD Demonstration Project, the NEGC will be providing a number of resources for CCHD on this dedicated web page. The video, "True Hearts Revealed", is dedicated to the patients, families, and professionals who have pioneered the way in pediatric cardiology,
The Care Coordination Conundrum for Children and Youth with Special Health Care Needs
In a new report funded by the Lucile Packard Foundation for Children’s Health,The Care Coordination Conundrum and Children and Youth with Special Health Care Needs, authors Sara S. Bachman, Meg Comeau, and Katharyn M. Jankovsky of the Catalyst Center at the Boston University School of Public Health discuss why care coordination has been insufficiently financed and reimbursed to date, and what can be done to address these challenges.