Did You Know?
Joanne Wechsler & Julie Gortze will attend Advocate Leader Partnership Program!
Two family/advocates will represent the NEGC at the ACMG meeting in Phoenix this March. Joanne Wechsler is a Family Support Consultant with Vermont Family Network, and is a member of the NEGC's Health Care Access & Finance work group. Julie Gortze is the Founder/President of Rare New England, Inc., in MA. Thank you for giving us your time!
The Advocate Leader Partnership Program is a subset within the broader ACMG clinical meeting. Family/advocates attend along with clinicians, but their days end with specialized de-briefing sessions with other family members and genetic counseling students. They learn, they teach, they connect. It's a successful model.
Society of Gynecologic Oncology (SGO) Genetics Toolkit
The SGO convened experts from the American Congress of Obstetricians and Gynecologists, National Society of Genetic Counselors, and patient advocacy groups Bright Pink, and Facing Our Risk of Cancer Empowered, to develop this web-based resource about issues surrounding hereditary risk assessment and genetic testing in women with or worried about gynecologic cancers.