Did You Know?
Joanne Wechsler & Julie Gortze will attend Advocate Leader Partnership Program!
Two family/advocates will represent the NEGC at the ACMG meeting in Phoenix this March. Joanne Wechsler is a Family Support Consultant with Vermont Family Network, and is a member of the NEGC's Health Care Access & Finance work group. Julie Gortze is the Founder/President of Rare New England, Inc., in MA. Thank you for giving us your time!
The Advocate Leader Partnership Program is a subset within the broader ACMG clinical meeting. Family/advocates attend along with clinicians, but their days end with specialized de-briefing sessions with other family members and genetic counseling students. They learn, they teach, they connect. It's a successful model.
Prader-Willi Syndrome (PWS) on GEMSS
PWS is one of over 30 genetic conditions featured on GEMSS - Genetics Education Materials for School Success. On October 1, 2016, we were fortunate to be an exhibitor at the Prader-Willi Syndrome of New England annual conference in Burlington, MA. We encourage you to visit the website!