Health Care Access & Financing

Quick link to health reform policy brief: 

New England Children with Genetic Disorders and Health Reform / Information and Recommendations for State Policymakers


The overarching goal of the Healthcare Access and Financing work group is to improve healthcare insurance coverage for individuals with genetic conditions.

The implementation of the Affordable Care Act (ACA) brings with it the opportunity and the risk of interpreting coverage needs, benefits and costs. These changes to healthcare warrant an understanding by all stakeholders of the healthcare needs of individuals with genetic conditions. The Healthcare Access and Financing Work Group will be undertaking a number of activities to engage and educate families, stakeholders, and decision makers in each New England state to encourage informed decisions regarding access and coverage to care.

More information and resources are available here:
Affordable Care Act Resources