The NERGN has endeavored to provide a limited number of resources for families, health care providers and public health professionals that are relevant to its mission. These resources take the form of definitions, publications, articles and links to other organizations, and are not intended to be a comprehensive listing. The intention is to provide useful information and to highlight some of the innovative thinking and approaches to care for individuals with inherited conditions. Providing resources to the audiences below fulfills part of the NERGN's purpose.

To view the resource you’re looking for, select the resource from the drop down menu below, then click “apply.”

Title Summary Age Group Topic
Connecticut Department of Public Health: Public Health Genomics The Public Health Genomics Office (DPH-GO) strives to integrate developing genomic technologies into public health policy, programs, and practice. The Office also serves as a resource for health professionals and the public about the role of genomics in disease prevention and health improvement. Child, Teen/Young Adult, Adult Public Health Departments
Connecticut Parent Advocacy Center As the Parent Training Information Center in CT, they offer information and support to families of a child with any disability through age 26. . Child, Teen/Young Adult Support & Advocacy
Coordinating Care for Children with Genetic Disorders: Sharing Exemplary Practices from Primary and Specialty Care Providers a report released in April, 2016, by the National Coordinating Center (NCC). Child, Teen/Young Adult Medical Home & Care Coordination
Critical Congenital Heart Disease: Books & Publications Books and publications for children, siblings and parents Child Critical Congenital Heart Disease
Critical Congenital Heart Disease: National Resources Videos and access to Kids with Heart National Association for Children's Heart Disorders Child Critical Congenital Heart Disease
Critical Congenital Heart Disease: Regional Resources Traditional Support Groups, Online Support/Informal Matching, Parent/Family Matching, Financial Support, and more... Child Critical Congenital Heart Disease
CT Title V Program's Services for Children with Special Health Care Needs  Offers resources for Children & Youth with Special Health Care Needs (CYSHCN), including Moving into Adult Health Care. Child, Teen/Young Adult Public Health Departments
Dana-Farber Cancer Institute, Cancer Genetics and Prevention Provide advanced options in genetic testing across the spectrum of new and established inherited cancer syndromes. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Danbury Hospital, Genetic Counseling Center Cancer genetics. Locations in Danbury and New Milford. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Dartmouth-Hitchcock, Familial Cancer Progam The Familial Cancer Program at Norris Cotton Cancer Center provides counseling for people who may have an increased risk of cancer because of their personal and/or family history. Locations include Lebanon, Manchester, Nashua and Keene. Child, Teen/Young Adult, Adult Genetic Clinic(s)

Pages