Defining the Responsibility to Recontact Research Participants with New Genetic Findings

Tuesday, April 9, 2019

American Society of Human Genetics (ASHG)

ASHG, Eight Partner Groups Define Key Issues and Principles

ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently, which would allow participants to benefit from current genomics advances. The statement was published in The American Journal of Human Genetics (AJHG).