Critical Congenital Heart Disease: National Resources


"True Hearts Revealed" (a YouTube video) is dedicated to the patients, families, and professionals who have pioneered the way in pediatric cardiology, the memory of those lost, and the spirit of those who stride forward now. With special thanks to Supermodels Unlimited for their support and for understanding beauty from without and from within. Thanks also to Camp Merrowvista of the American Youth Foundation, and to the Wentworth-Douglass Hospital and Health Foundation.

"Heart Smart: CCHD Screening for Parents" 
Baby's First Test and Children's National Medical Center present the Heart Smart video series, educating health care providers and families on screening for critical congenital heart disease.
June 2012

National Organizations

Kids with Heart National Association for Children's Heart Disorders: non-profit organization dedicated to providing support for families affected by congenital heart defects through surgical care packages, local support group meetings, and through an online list serv. This organization also raises awareness through local events across the U.S. and has an extensive library of books available for purchase.