COVID-19 Resources

The following list of resources are geared toward health care providers and families. We will be updating them periodically and hope you find them helpful. Please let us know if you have any questions! 

The following list of resources are geared toward health care providers. We are working on a similar list geared toward families. We will be updating them periodically and hope you find them helpful. Please let us know if you have any questions!
GENETICS CLINICS IN NEW ENGLAND

Name: Clinical Services Directory
Type of Resource: Directory Resource
Developed By: National Coordinating Center for the Regional Genetics Networks (NCC)
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks,Patients and/or Families,Public Health
Link to Resource: https://clinics.acmg.net

INFORMATION FOR FAMILIES

Name: Telewhat?: An Introduction to Telegenetics
Type of Resource: Infographic
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC)
Intended Audience: Patients and/or Families
Link to Resource: https://nccrcg.org/wp-content/uploads/Telewhat-Infographic.pdf

Name: What to Expect From a Telegenetics Visit
Type of Resource: Video
Resource Developed By: Western States Regional Genetics Network (WSRGN)
Intended Audience: Patients and/or Families
Link to Resource: https://www.youtube.com/watch?v=-h-XRYtLEn8&feature=youtu.be

CRITICAL RESOURCES

* New Name: Medical Food Access Emergency Fact Sheet
Type of Resource: Directory
Resource Developed By: Southeast Regional Genetics Network
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks,Patients and/or Families,Public Health
Link to Resource: https://southeastgenetics.org/covid_fact_sheet.php

* New Name: Emergency Preparedness Toolkit for Genetics Providers and Patients
Type of Resource: Fact Sheet
Resource Developed By: National Coordinating Center for the Regional Genetics Networks (NCC)
Intended Audience: Genetics Providers
Link to Resource: https://nccrcg.org/wp-content/uploads/Emergency-Preparedness-Resources-for-Genetic-Providers-and-Patients-2020.pdf

HEALTH GUIDELINES

* New Name: Critical Updates on COVID-19
Type of Resource: Website
Resource Developed By: American Academy of Pediatrics
Intended Audience: Genetics Providers, Non-Genetics Providers
Link to Resource: https://services.aap.org/en/pages/2019-novel-coronavirus-covid-19-infections/

Name: Coronavirus Disease 2019 (COVID-19) Update—Information for Clinicians Caring for Children and Pregnant Women
Type of Resource: Webinar
Resource Developed By: Centers for Disease Control and Prevention (CDC)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://emergency.cdc.gov/coca/calls/2020/callinfo_031220.asp

COVERAGE AND PAYMENT FOR TELEHEALTH DURING COVID-19

* New Name: Medicare, Telehealth, COVID-19
Type of Resource: Webinar
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers,Administrators
Link to Resource: https://www.youtube.com/watch?v=wsPjWgWDbnA&feature=youtu.be

Name: Medicare Telemedicine Health Care Provider Fact Sheet
Type of Resource: Fact Sheet
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cms.gov/newsroom/fact-sheets/medicare-telemedicine-health-ca...

Name: Telehealth Coverage Policies In Time for COVID-19
Type of Resource: Website
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks
Link to Resource: https://www.cchpca.org/resources/covid-19-telehealth-coverage-policies

POLICIES SHAPING DELIVERY OF TELEHEALTH SERVICES

State Level

* New Name: States Expediting Licensure for Inactive/Retired Licensees in Response to COVID-19
Type of Resource: Guide
Resource Developed By: Federation of State Medical Boards (FSMB)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.fsmb.org/siteassets/advocacy/pdf/states-expediting-licensure-for-inactive-retired-licensees-in-response-to-covid19.pdf

* New Name: States Waiving Licensure Requirements/Renewals in Response to COVID-19
Type of Resource: Guide
Resource Developed By: Federation of State Medical Boards (FSMB)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.fsmb.org/siteassets/advocacy/pdf/state-emergency-declarations-licensures-requirementscovid-19.pdf

* New Name: COVID-19 Related State Actions Telehealth
Type of Resource: Website
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cchpca.org/resources/covid-19-related-state-actions

* New Name: Quick Glance State Telehealth Actions in Response to COVID-19
Type of Resource: Guide
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cchpca.org/sites/default/files/2020-03/STATE%20TELEHEALTH%20ACTIONS%20IN%20RESPONSE%20TO%20COVID%20OVERVIEW%203.29.2020.pdf

National

* New Name: Physicians and Other Clinics: CMS Flexibilities to Fight COVID-19
Type of Resource: Guide
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cms.gov/files/document/covid-19-physicians-and-practitioners.pdf

* New Name: Telehealth & COVID-19- Includes CARE Act Updates & CMS Guidances
Type of Resource: Webinar
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cchpca.org/resources/search?type[186]=186

* New Name: COVID-19 Maternal and Child Health Bureau Frequently Asked Questions
Type of Resource: FAQ,Website
Resource Developed By: Health Resources and Services Administration (HRSA)
Intended Audience: Regional Genetics Networks
Link to Resource: https://mchb.hrsa.gov/coronavirus-frequently-asked-questions

Name: HIPAA Compliance and COVID-19 Coronavirus
Type of Resource: Fact Sheet
Resource Developed By: HIPAA Journal
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.hipaajournal.com/hipaa-compliance-and-covid-19-coronavirus/

Approved Modalities for Telehealth
Under this Notice, covered health care providers may use popular applications that allow for video chats, including Apple FaceTime, Facebook Messenger video chat, Google Hangouts video, or Skype, to provide telehealth without risk that OCR might seek to impose a penalty for noncompliance with the HIPAA Rules related to the good faith provision of telehealth during the COVID-19 nationwide public health emergency. Providers are encouraged to notify patients that these third-party applications potentially introduce privacy risks, and providers should enable all available encryption and privacy modes when using such applications.

Under this Notice, however, Facebook Live, Twitch, TikTok, and similar video communication applications are public facing, and should not be used in the provision of telehealth by covered health care providers

Name: Telehealth and COVID-19
Type of Resource: Webinar
Resource Developed By: National Consortium of Telehealth Resource Centers
Intended Audience: Health Care Providers
Link to Resource: https://www.telehealthresourcecenter.org/event/nctrc-webinar-telehealth-and-covid-19/

AVAILABILITY OF TELEHEALTH SITES

* New Name: US Directory of Service Providers for Telemedicine and Telehealth
Type of Resource: Web Site
Resource Developed By: Arizona Telemedicine Program, Southwest Telehealth Resource Center
Intended Audience: Genetics Providers,Non-Genetics Providers,Administrators
Link to Resource: https://telemedicine.arizona.edu/servicedirectory

* New Name: Global COVID19 Telehealth Directory**
Type of Resource: Google Doc
Resource Developed By: Kanupriya Agarwal, Karan Kataria
Intended Audience: Genetics Providers,Non-Genetics Providers,Administrators
Link to Resource: https://docs.google.com/spreadsheets/d/1XMsJJIduO6yI_GEo1Vy_b_SXoz9YwbgtEL63-siNS_Q/htmlview

**Disclaimer: for public informational purposes only, and support during COVID-19. Information herein not endorsed nor discredited. Utmost care taken to provide accurate and updated information. May not be exhaustive nor complete. No personal or financial liability. -- Kanupriya Agarwal, Karan Kataria (Owners).

IMPROVING YOUR TELEHEALTH SERVICES

* New Name: Telegenetics Tips for Practice and Supervision
Type of Resource: Infographic
Resource Developed By: GC Twitter Users
Intended Audience: Genetics Providers,Educators,Students
Link to Resource: https://drive.google.com/file/d/1_-RFU7FsOnPLzV6cqe6Z91qIvza2qF2s/view

Name: Telehealth Etiquette Checklist
Type of Resource: Checklist
Resource Developed By: National Consortium of Telehealth Resource Centers
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.telehealthresourcecenter.org/wp-content/uploads/2019/07/Telehealth-Etiquette-Checklist.pdf

Name: Telehealth Best Practices
Type of Resource: Video
Resource Developed By: Western States Regional Genetics Network
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.youtube.com/watch?v=lQx0SDh9Jc0&feature=youtu.be

Name: Telehealth Coordinator E Training
Type of Resource: Web Resource
Resource Developed By: California Telehealth Resource Center
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.telehealthtrain.org/

STARTING UP TELEHEALTH SERVICES

* New Name: 2020 Medicare Learning Network Telehealth Services Booklet
Type of Resource: Guide
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cms.gov/Outreach-and-Education/Medicare-Learning-Network-MLN/MLNProducts/Downloads/TelehealthSrvcsfctsht.pdf?utm_source=Telehealth+Enthusiasts&utm_campaign=33c8baa213-EMAIL_CAMPAIGN_2020_03_24_07_01&utm_medium=email&utm_term=0_ae00b0e89a-33c8baa213-353223577

Name: Equipment to Start Doing Telehealth Quickly
Type of Resource: Guide
Resource Developed By: Western States Regional Genetics Network (WSRGN)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.westernstatesgenetics.org/wp-content/uploads/2020/03/Telehealth_Equipment_List.pdf

Name: Checklist for Initiating Telehealth Services
Type of Resource: Checklist
Resource Developed By: Great Plains Telehealth Resource and Assistance Center
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.telehealthresourcecenter.org/wp-content/uploads/2019/07/checklist190508-gpTRAC.pdf

Name: Sample Telehealth Consent Language
Type of Resource: Guide
Resource Developed By: Western States Regional Genetics Network (WSRGN)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.westernstatesgenetics.org/wp-content/uploads/2020/03/Sample_telehealth_consent_language.pdf

Name: Mapping and Designing Telehealth Clinic Workflows
Type of Resource: Webinar
Resource Developed By: National Consortium of Telehealth Resource Centers
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.youtube.com/watch?v=ZfcEdT5ZRD0&feature=youtu.be

ADDITIONAL RESOURCES

* New Name: Weitzman Institute COVID-19 Resources – Caring for Key Populations, Cases and Questions, Complex Integrated Pediatrics, Managing Workflow, Emergency Preparedness, Telehealth Strategies
Type of Resource: Recorded ECHO Series
Resource Developed By: Weitzman Institute
Intended Audience: Non-Genetics Providers
Link to Resource: https://www.weitzmaninstitute.org/coronavirus

Additional Resources on Telehealth Curated by the Western States Regional Collaborative: https://www.westernstatesgenetics.org/telehealth-resources/