2019 Newborn Screening Bootcamp

Sponsored by BaybsFirstTest at the Genetic Alliance, and EveryLife Foundation 

Join us for a full day workshop hosted by the EveryLife Foundation for Rare Diseases and Genetic Alliance, to learn about newborn screening at the federal level, the Recommended Uniform Screening Panel (RUSP), and to hear from fellow advocacy organizations about their experiences.

8:00 AM – 5:00 PM
Saturday, April 6th 8:00

Chicago Hilton
720 S Michigan Ave, Chicago IL 60605


$500 travel stipends are available.
Breakfast and lunch will be provided.

Saturday, April 6, 2019 - 09:00 to 14:00