"All individuals with genetic conditions in New England have the opportunity to achieve their fullest potential."
The mission of the New England Regional Genetics Network (NERGN) is to promote and improve health and social well-being of those with inherited conditions through collaborations among public health professionals, private health professionals, educators, consumers and advocates in Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut.
To achieve this, the NERGN will take on multiple support roles in order to enhance existing health infrastructures and related services for individuals in the New England region living with a genetic condition, with a particular emphasis on medically underserved populations.
For 2020/2021, the focus of our support will be on primary care providers, genetic counselors, and family-led organizations such as Family Voices. Telehealth was already a priority before the COVID-19 pandemic, but it is even more important now for both clinicians and families to be supported as they adapt to telehealth for services, including genetics. We care about equity and there is much work to do.
The purpose of all seven Regional Genetics Networks (RGNs) across the country is to: 1) link medically underserved populations (based on poverty, rural geographic location, and/or populations that experience health disparities)1 to genetic services; 2) implement quality improvement activities to increase the connection with genetic services for the medically underserved; 3) implement evidence-based innovative models of telehealth and/or telemedicine with a focus on clinical genetics outreach; and 4) provide resources to genetic service providers, public health officials and families.
- New England Regional Genetics Network (NERGN)
- New York-Mid Atlantic Consortium for Genetics and Newborn Screening Services (NYMAC)
- Southeast Regional Genetics Network (SERN)
- Midwest Genetics Network
- Heartland Genetics and Newborn Screening Collaborative
- Mountain States Regional Genetics Network (MSRGN)
- Western States Regional Genetics Networks (WSRGN)