Quality Improvement: Activities Highlights

 

The QI work group is comprised of two groups, the Genetics of Developmental Delay QI work group, which formed in 2007, and the Metabolic Center QI work group, which was established in 2009.

 

Genetics of Developmental Delay QI Work Group

  • Comprised of three genetic clinics in ME, NH and VT
  • Identified the target population for their research – individuals with developmental  delay
  • Developed a process for gathering data through a “pink form” – a checklist for doctors or genetic counselors to use during patient visits, based on their best practices
  • Paper “pink form” was transformed into a secure web-based tool (website) with a central collection site (UNH), which allows for aggregating data.    
  • Analysis of aggregated data allows clinicians to look for trends, differences, and omissions, as well as site-specific reporting requirements. The result is improved quality of care.
  • In 2012 these activities were approved for American Board of Medical Specialties (ABMS) Maintenance of Certification (MOC Part IV).  This certification for physicians is of benefit in a number of ways, and offers an incentive to physicians to participate with the NEGC.
  • The group hopes to expand to additional clinic sites in the coming year. More data increases the benefit and impact.
Metabolic Center Quality Improvement QI Work Group
  • Eight metabolic clinics throughout New England have participated in this project, two of which  are also in the Genetics of Developmental Delay QI work group.
  • Identified the target population for the group’s research:  individuals with PKU or MCAD
  • Used the proven methodology for gathering and aggregating data developed by the Genetics of Developmental Delay QI work group as a foundation for their work.
  • Created checklists for PKU and MCAD to be filled out by clinicians at patients’ visits; the intention is not to instruct a doctor how to conduct a visit, but rather to provide a helpful framework.
  • Steps are underway to transform the checklist into an electronic format. It will have the same look and feel as the “pink form” in an effort to make it as easy to fill out.
  • Analysis of aggregated data allows clinicians to look for trends, differences, and omissions, as well as site specific reporting requirements. The result is improved quality of care.
  • These activities have also been approved for ABMS MOC Part IV certification.  This is of benefit in a number of ways, including offering an incentive to physicians to participate with the NEGC.