Promoting and Improving the Health and Well-Being of People with Inherited Conditions is a fact sheet summarizing results of the second survey conducted by the Health Care Access & Finance work group in 2015-2016. Like the first survey (2013-2014), it was sent to families in New England who have children with genetic conditions. The goal was to gain a better understanding of issues related to health care access and coverage/reimbursement for this population.
Author: Ashley Hamill, NH LEND Trainee
New England Children with Genetic Disorders and Health Reform / Information and Recommendations for State Policymakers is a policy brief written by Meg Comeau and the Health Care Access & Finance Work Group in 2014. It incororates information gleaned from the group's initial survey of New England families of children with genetic conditions.
On September 2, 2014, Meg Comeau presented a webinar in which she shared highlights of the policy brief: New England Children with Genetic Disorders and Health Reform / Information and Recommendations for State Policymakers.