Education & Outreach: Products

Education & Outreach Products

Genetics Education Materials for School Success (GEMSS)

gemss homepage imageVisit the website: www.gemssforschools.org. We are continually improving this website, so we invite feedback! 

GEMSS was created for teachers, therapists, counselors, parents and schools so they can best support students with genetic conditions.  This new website is unique; it houses a library of useful tools and tips for educational and classroom support, dietary needs, field trips, sports and much more, all in one place.

The aim of GEMSS is to make school a successful and positive experience for all students who have genetic conditions. As of January 2015, the website includes information on supporting students with:

  • 22q Deletion
  • Achondroplasia
  • Aicardi Syndrome
  • Angelman Syndrome
  • Autism Spectrum Disorder
  • CHARGE Syndrome
  • Congenital Heart Defects
  • Cornelia de Lange Syndrome
  • Cystic Fibrosis
  • Down Syndrome
  • Eherls-Danlos Syndrome
  • Fetal Alcohol Spectrum Disorders
  • Fragile X
  • Galactosemia
  • Kabuki Syndrome
  • Klinefelter Syndrome
  • Marfan Syndrome
  • MCAD
  • MECP2 Duplication
  • Mitochondrial Disorders
  • Neurofibromatosis 1 
  • Neuromuscular Disorders
  • Noonan Syndrome
  • PKU
  • Prader-Willi Syndrome 
  • Rett / Rett varian Syndrome
  • Rubinstein-Taybi Syndrome
  • Russell-Silver Syndrome
  • Sickle Cell Disease
  • Smith-Magenis Syndrome
  • Sotos
  • Tuberous Sclerosis
  • Turner Syndrome
  • Urea Cycle Disorders
  • VLCAD
  • Williams Syndrome
  • Undiagnosed/Other

 

Newborn Screening Brochures in Multiple Languages

The following brochures developed by New England Public Health Genetics Education Collaborative (NEPHGEC), give the reader an overview of the newborn screening process and the genetic conditions for which the panel screens, available in multiple languages. Click on the links below to download the PDFs.

Understanding Genetics Guide for Patients and Professionals

Understanding Genetics: Guide for Patients and Professionals was published for New England in 2007.