Resources for Families

New!   The Genetic Alliance sponsored a webinar entitled "Improving Services for Individuals with Genetic Conditions", in July 2015. Click here for the recording.

Family Resources

Support & Advocacy

The following listing provides organizations and information designed to provide support to those affected by genetic conditions. There are also organizations dedicated to work and involvement for the purpose of advocating for improvement of care, treatment and awareness of genetic conditions.

The Global Genes Project

Family Voices

Genetic Alliance


National Organization for Rare Disorders (NORD)

Parent to Parent

Special Needs Parent Chat