News

2.08.2012	NIH Rare Disease Day - February 29, 2012
2.01.2012	NEGC submits competitive application for the next 5 years
12.19.2011	FY 2012 Funding Finalized: Title V Cut Minimized

Events

2.29.2012	NIH Rare Disease Day
2.29.2012	International Congress on Research of Rare and Orphan Diseases
3.04.2012	11th Annual EHDI National Conference

Did You Know?

GEMSS has been launched!

Genetic Education Materials for School Success (GEMSS) is a new website for elementary school teams working with children with genetic conditions. Please explore, please share, and please take the survey to help us make it better!

This is a product of the NEGC's Dissemination, Education and Marketing (DEM) work group, chaired by Dr. Leah Burke. Congratulations!

Lisa Bujno, NH DHHS, represented NEGC at SACHDNC

Lisa Bujno, MSN, APRN, attended the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children in Washington, DC, on January 26-27. Lisa is Bureau Chief in the NH Division of Public Health Services, and was especially interested in discussions regarding Critical Congenital Heart Disease (CCHD), a recent addition to newborn screening panel recommendations.

Featured Resource

Carol Orton, RN, explores role of school nurse as transition facilitator

Carol has a passion both for school nursing and transition to adult health care. With the NEGC's support, and as a student in a community nursing course, she interviewed 14 school nurses across New England. Read Carol's full report.