Traditional Support Groups
Heart to Heart: Maine-founded in January 2013
Mended Little Hearts: S. MA and RI-also have a Mom’s Night Out in addition to traditional support group
Online Support/Informal Matching
Erika Kate Hope Alliance: Family forum; informal matching, spiritual support
Little Hearts: Parent matching program
Stronghearts: Prepare for surgery workshops
Kids with Heart, National Association for Children’s Heart Disorders: online bookstore
Baby Hearts Press: online bookstore for CHD community
Stronghearts: grants, pay for specialized camp
Eliana Grace Foundation: grants
Heart to Heart: Awareness events
Camp Meridian-3 day overnight camp in NH for kids 8-18 with CHD
Caring Bridge: website where families can set up personalized webpages to communicate with family and other informal supports. Also, allows for online connection with other families.
James Project: Resources for parents on how to be an advocate and communicate efficiently with the care team.