Critical Congenital Heart Disease: Regional Resources

Traditional Support Groups

Heart to Heart: Maine-founded in January 2013

Mended Little Hearts: S. MA and RI-also have a Mom’s Night Out in addition to traditional support group 

Little Hearts-CT 

Online Support/Informal Matching

Mended Little Hearts: Informal matching 

Erika Kate Hope Alliance: Family forum; informal matching, spiritual support         

Parent/Family Matching

Little Hearts: Parent matching program 

Information/Resource Bags

Stronghearts: Prepare for surgery workshops 

Kids with Heart, National Association for Children’s Heart Disorders: online bookstore

Baby Hearts Press: online bookstore for CHD community 

Financial Support

Erika Kate Hope Alliance Foundation: grants

Stronghearts: grants, pay for specialized camp 

Eliana Grace Foundation: grants 

Events/Awareness

Heart to Heart: Awareness events 

Other

Camp Meridian-3 day overnight camp in NH for kids 8-18 with CHD 

Caring Bridge: website where families can set up personalized webpages to communicate with family and other informal supports. Also, allows for online connection with other families.

James Project: Resources for parents on how to be an advocate and communicate efficiently with the care team.