Public Health Genomics (PHG) Foundation
The National Data Guardian’s office has published a paper to help build consensus on data sharing for NHS clinical genetics and genomics services.
The paper draws on an evidence session held in October 2016 by the NDG office, with collaboration from the PHG Foundation and the Association for Clinical Genomic Science (ACGS).
Welcoming the paper, the Head of Science at the PHG Foundation, Dr Sobia Raza said “Sharing genomic variant data is a necessary part of clinical care and NHS service delivery. Our joint workshop with the ACGS in 2015 highlighted the urgent need for national agreement on this issue including a common understanding of the legitimacy of data sharing.”