Advisory Committee


Marie Burlette, RN, BSN, MPH
Supervising Nurse Consultant, CT Department of Public Health Laboratory

Delores Williams-Edwards, advocate
Executive Director, Sickle Cell Disease Association of America - Southern CT 


MaryAnn Gordon, advocate
Metabolism Program, Barbara Bush Children's Hospital

Wendy Smith, MD
ME Medical Partners Pediatric Specialty Group
Division Director, Clinical Medical Genetics, Barbara Bush Children’s Hospital


David Helm, PhD
Institute for Inclusion, University of Massachusetts 

Kepler Jeudymentor for youth/young adults (TBD) on the Advisory Committee
Program Specialist, Next Step, Inc.

Stephanie Coury, MS, CGC
Metabolism Program, Division of Genetics, Children's Hospital Boston

New Hampshire

Audrey Knight, MSN
Child Health Nurse Consultant, NH Department of Public Health Services

Ashley Lamb, MD, MPH
Internal Medicine & Pediatrics, CORE Physicians, Epping, NH

Martha-Jean Madison, advocate
Co-Director, NH Family Voices

Debra Nelson, advocate
NH Head Start Collaboration Office, DCYF

Rhode Island

Christelle Farrow, MPH
Sr. Public Health Promotion Specialist, RI Department of Health 

Chanika Phornphutkul, MD
Pediatric Endocrinologist, Hasbro Children’s Hospital / RI Hospital

Tara Townsend, advocate
Family Support Coordinator, RI Parent Information Network


Cynthia Ingham, RN, BSN
VT Newborn Screening Program Chief, VT Department of Health/CSHN

Judith Shaw, EdD, MPH, RN
Executive Director, VT Child Health Improvement Program, University of VT, College of Medicine

NEGC notes the passing of Sondra Soloman, former member of the Advisory Committee from Vermont

With sadness, we join the community of people mourning the loss of Sondra Solomon, Psychology Professor @ the University of Vermont and long-time contributor to NEGC. In Aprilt 2015, Dr. Solomon gave a keynote address at our annual meeting: Living with Distinction: The Psychosocial Correlates of Genetic Disorder Related Stigma (scroll down for her slides). Sondra inspired us and she will be missed. Remembrances for Sondra Solomon

September 2015