Work Groups

National Transition Interest Group Minutes

Dr. Susan Waisbren co-chairs the National Transition Interest Group, which holds monthly calls on the last Wednesday of each month with representatives from each of the Regional Collaboratives. This provides an excellent forum for sharing ideas and trends. Notes from the calls and materials are below:

July 28, 2011
June 29, 2011
May 25, 2011
February 23, 2011
- Region 4's transition work group reviewed multiple transition resources and compiled this list of "top resources". Click here to see the rating tool they used.
December 29, 2010
October 27, 2010
September 29, 2010
June 30, 2010
May 26, 2010 materials shared from Children's Boston:
- Instructions for using transition toolkit
- Health Assessment: How Ready Are You to Handle Your Own Health Care as an Independent Adult?
- Medical Health Summary
- Children's Hospital Metabolism Transition Plan
- Metabolic Condition FAQ Sheet (Galactosemia)
February 24, 2010
April 28, 2010
January 27, 2010
December 9, 2009 (summary pending); materials shared during and after the call:
- 2008 and 2009 issues of the Transition Digest, (available as PDFs); to be added to the distribution list e-mail John Reiss.
- Transition related training and informational materials from the Institute for Child Health Policy at the University of Florida are available to view and download (at no cost).
- Chronic Illness and Disability: Transition from Pediatric to Adult-Based Care; Baylor College, TX (November 2009)
- Transitions Conference; Bloorview Kids Rehab, Toronto (May 2008)
October 28th, 2009
September 30, 2009
July 29, 2009; materials for discussion: "How ready are you to handle your own health care?"; "Delaware Transition Initiative"; "My portable health history form"
June 24, 2009
May 27, 2009: agenda
April 29, 2009: agenda; call summary
March 25, 2009
February 25, 2009
January 28, 2009: agenda; call summary
October 29, 2008
September 24, 2008; discussion topic: Survey of Adult Health Care Providers about Health Care Transition for Youth with Special Health Care Needs
July 30, 2008, discussion topic: survey (draft) for PKU conference
June 25, 2008
May 28, 2008
April 30, 2008
March 26, 2008

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Genetics Collaborative
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Email: Contact Us
Phone: 603-862-4320
Fax: 603-862-0555

The New England Genetics Collaborative is funded by Cooperative Agreement No. U22MC10980 between the University of New Hampshire and the Health Resources and Services Administration/ Maternal and Child Health Bureau/DSCSHN Genetic Services Branch.