Innovative Project Awards
We are pleased to announce that three new projects were selected for Innovative Project funding in 2011-2012! Our review team, led by the NEGC Advisory Committee Chair, included experts from the New England region as well as from other parts of the country. Assessing the Implications of the Affordable Care Act for Access to Genetic Medical Services in New England Jason Smith, MTS, JD and Audrey Chapman, PhD; University of Connecticut Health Center This project provides an analysis of current law relating to genetic medical services in each of the New England states and an analysis of key components for the recently enacted Patient Protection and Affordable Care Act (PPACA). The project will identify areas of impact and opportunity for policy makers in the dynamic enrironment of PPACA implementation and will make recommendations for future action as the new health care law is implemented. Findings will be made available in papers, fact sheets and papers for presentations.
New Paradigm of Integrated Home Care Management for Adults with Sickle Cell Disease
Victoria Odesina, DNP, APRN; University of Connecticut Health Center The goal of the second year of this project is to facilitate and improve the home health care and health related quality of life of adults 18 years and older with sickle cell disease in Connecticutt. This will be accomplished through collaboration with the two CT Sickle Cell Community-Based Organizations, the two CT Sickle Cell Centers, and primary and specialty care providers. The emphasis will be a transition from a model of "only episodic care" to a new paradigm of care that includes prevention, intervention, education, and continuity of care.
Living with Lynch syndrome (LS): Medical Updates and Psychosocial Support for Individuals and Families Impacted by LS Wendy McKinnon, MS, CGC; Vermont Cancer Center, University of Vermont and State Agricultural College We propose to hold a one-day event for individuals and families identified as having Lynch syndrome. Invited individuals will have received genetic counseling and genetic testing through one of two Familial Cancer Programs at either Fletcher Allen Health Care or Dartmouth Hitchcock Medical Center. The purpose of the event is to update individuals and their family members on the most up-to-date cancer screening and cancer prevention strategies for their situation. This is particularly important in rural areas where people may not have access to such information. In addition to families, we plan to invite health care providers who care for individuals with Lynch syndrome to increase their knowledge and to help them better manage their patients' care.
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